12 June 2019

The 31 May 2019  saw Newham's Sickle Cell and Thalassaemia Centre host its annual Transition event for children who are shortly to move from paediatric care to adult care.

The event, which was created with the idea of demystifying the experience of transitioning between care types for children affected with Sickle Cell disease or  Beta Thalassaemia Syndromes, was a great success with families from across Newham coming together to discuss the care of their children receive.

The  event was hosted by the owners of Ronak Restaurant in Forest Gate, which was kindly allocated to ELFT for use for this event. The owners were very accommodating, providing a wonderful lunchtime spread for attendees which were all free. The family had wanted to host it to show their gratitude for the care given to their son by the service.

Supporting Young People Moving to Adult Care
The Transition event is the brainchild of the Sickle Cell and Thalassaemia Centre Service Manager and specialist nurse, Sekayi Tangayi. It was created following feedback from young service users who expressed anxiety about switching been children’s services to adult care. This is the second Transition event hosted by the Sickle Cell and Thalassaemia Centre.

Whereas the first event focused on talks from consultants and nurses aimed at explaining the process of transitioning, this event was more focused on understanding the concerns that  service users have when facing the process of moving to the adult service.

Listening to Young People
A round of introductions kicked off the event allowing attendees to get to know the team and to introduce themselves to one another. After the introductions, round table discussions took place focusing on questions identifying their current expectations of transitioning, their concerns about moving to adult care and their hopes for what transition could become.

Each attendee had the opportunity to give their answers to each question to a member of the team who took down their responses on a flipchart.

After the lunchbreak, the groups convened to feedback their responses to the questions to the group so that everyone knew which aspects of transitioning was a concern and which aspects people were happy with. The interesting thing was, the responses from each table were eerily similar in nature.

Next Steps
The Sickle Cell and Thalassaemia team will use the information collected to design a better transition pathway for  affected service users.

Service Manager and Specialist Nurse, Sekayi Tangayi said, "With a better Transition pathway, we hope the young people and their families will be more confident in the process of transitioning, and the young person will be able to engage more with their care once they are an adult and the responsibility to engage is solely with them. 

I would like to thank everyone who participated especially the team for their hard work and enthusiasm."


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